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Read up on james' story

Throughout the course of this journey we have kept a day-by-day journal... from the time of diagnosis, through all the ups and downs and into the present.

Click the link below to read all of the posts from 08-2018 through 11-2019.  Once there, click UPDATES to get up to speed on James' battle.

New posts will be located on this site, as well as the old (Fundrazr) site linked below.
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Day +1,357

8/24/2022

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Quick update on James, as well as the Cals Angels Glow Walk which is in next month!

James Update:

James is doing FANTASTIC since we received his discharge from cancer treatment a few months ago.  Today (8/24) was his first day of preschool and he/we could not be more excited for him.  
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I mentioned in our last post that James has started to re-grow hair - which is REALLY starting to come in (spotty/not everywhere, which is totally fine... we'll take it).  We're also seeing definite signs of both eyebrow and eyelash growth which is equally amazing.  And most importantly, James is feeling GREAT and as full of energy and positivity as ever.
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In our last post we mentioned we were officially discharged from Lurie's - but it turns out we still had to go back 2x since (routine stuff)... most recently this past Friday for more bloodwork and labs.  Everything checked out and we are now free and clear for a full year... just survivorship visits annually.  We will need to do some local blood work in 3-4 months as James' body is still not creating adequate antibodies from the multiple years of steroid and immunosuppressants - it could be another year+ before he makes progress there.  Until then, we keep some emergency medication on hand at home (injection) but thankfully haven't had any need for it thus far.

So in a nutshell, life is great, James is great, everything is great!

Cals Angels Update:

It's that time of year again... and we need your help (yes, yet again).  I wouldn't ask if it was not critically important... Cal's is an AMAZING organization that both helps fund pediatric cancer research and assist the kids and families battling childhood cancer.  They have a huge presence and the children's hospital and can't tell you how much all their support meant to us during our time spent there.  I know gas costs an arm and a leg,  the flight you just tried to take got canceled 3x, and your favorite restaurant has no servers and we're still in an ongoing battle with a pandemic... life isn't ideal at the moment and hasn't been for awhile.  As rough as it seems, there are kids and families out there that have it much worse and REALLY need our help.  Please consider joining "Team James" via a donation or in person on 9.24.22.  You can accomplish either by clicking the Cal's logo below - and feel free to share this link out.  We had an amazing turnout raising over $12,000 last year because of your support and your willingness to spread the word.

Click the image below to sign/up or donate:

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Below is a video, from last year, of James leading the walk... and loving it.  If this doesn't inspire you to join the cause and donate I am not sure what will :-)
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James also made his way onto Cal's yard signs this year!
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And last but not least - a few more photos of James since our last update...

We appreciate you all and THANK YOU, as always, for your support thru all the ups and downs (but all up's right now and hopefully forever)!
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    Author

    Dan McCarthy, dedicated father and happy husband

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  • Home
  • Glow Walk
  • Journal
  • James' Story
  • Wall of Support
  • Donate To James' Care
    • Fundrazr Site
  • NBC Clips
  • Thank you...